Tuesday, September 07, 2010

Data Resources



American Cancer Society
American Cancer Society –(main website) http://www.cancer.org/ American Cancer Society’s national website which features general information about cancer, treatment and support, cancer research, cancer statistics, and local cancer resources.
American Cancer Society’s Cancer Facts & Figures 2010 http://www.cancer.org/Research/CancerFactsFigures/CancerFactsFigures/cancer-facts-and-figures-2010 “Provides the estimated numbers of new cancer cases and deaths in 2010 as well as information on cancer incidence, mortality, survival, and risk factors. The topic of the special section is multiple primary cancers.”
American Society of Clinical Oncology – (ASCO)
ASCO Cancer Foundation http://www.ascocancerfoundation.org/ The ASCO Cancer Foundation’s main website. ASCO funds research and education programs both in the U.S. and abroad and helps deliver physician-approved information directly to those in need.
Cancer.net http://www.cancer.net/ Supported by The ASCO Cancer Foundation, this website offers comprehensive, oncologist-approved information to help patients make informed decisions about their health care.
Behavioral Risk Factor Surveillance System (BRFSS)
BRFSS http://www.cdc.gov/brfss/index.htm Main page for BRFSS on CDC website (cancer screening data by state and national median)
BRFSS prevalence and trends http://apps.nccd.cdc.gov/brfss/ Main page for BRFSS prevalence and trends by state plus national median on CDC website
Indiana BRFSS reports http://www.in.gov/isdh/22860.htm Indiana BRFSS annual reports and newsletters
SMART BRFSS http://apps.nccd.cdc.gov/brfss-smart/SelMMSAPrevData.asp Prevalence data for selected metropolitan/micropolitan statistical areas, cities and counties
Cancer Research
American Association for Cancer Research http://www.aacr.org/ American Association for Cancer Research’s website, which provides information about advances in the causes, diagnosis, treatment and prevention of cancer
American Institute for Cancer Research http://www.aicr.org/site/PageServer American Institute for Cancer Research provides valuable information about education to reduce cancer risk, cancer facts, interpretation of cancer research, and funding for cancer research.
Cancer Research Institute http://www.cancerresearch.org/ Cancer Research Institute’s website provides information about support/coordination of laboratory and clinical efforts that will lead to the immunological treatment, control, and prevention cancer.
CDC Resources
CDC Chronic Disease Indicators http://apps.nccd.cdc.gov/cdi/Default.as Cancer incidence, mortality and screening data available by state, region or nation.
CDC Wonder http://wonder.cdc.gov/cancer.html Cancer incidence and mortality available from CDC Wonder (by year, state, metropolitan area, age group, race, sex and cancer site classifications).
The Economic Burden of Chronic Disease report http://www.chronicdiseaseimpact.com/ An Unhealthy America: The Economic Burden of Chronic Disease (fact sheet for US and each state – includes direct costs of treatment expenditures, risk factors and lost productivity)
The Milken Institute, An Unhealthy America: The Economic Burden of Chronic Disease report http://www.milkeninstitute.org/pdf/ES_ResearchFindings.pdf An Unhealthy America:  The Economic Burden of Chronic Disease report (includes cancer)
Health Disparities in Cancer
CDC – cancer health disparities http://www.cdc.gov/cancer/healthdisparities/ CDC website with basic information about health disparities in cancer.
National cancer Institute’s Center to Reduce Cancer Health Disparities http://crchd.cancer.gov/ National Cancer Institute’s Center to Reduce Cancer Health Disparities (CRCHD). Provides information regarding research, training programs, and resources for cancer-related health disparities.
Incidence/ Mortality Data
Cancer Deaths Fact Sheet http://www.in.gov/isdh/19590.htm Indiana cancer fact sheet
Cancer Incidence & Mortality Reports http://www.in.gov/isdh/22689.htm Indiana cancer incidence and mortality reports
Indiana Mortality Reports http://www.in.gov/isdh/19096.htm Indiana mortality reports (includes county and select cities)
Local Cancer Resources
Community Cancer Care http://www.cccoutreach.com/ “Community Cancer Care is an Indianapolis, Indiana based private health care organization that partners with rural and underserved hospitals as well as those in urban locations to provide their patients with cancer care and programming.”
Hoosier Oncology Group http://www.hoosieroncologygroup.org/ Contains information about cancer research and publications, cancer trails, and cancer research advocacy.
IU Simon Cancer Center http://www.cancer.iu.edu/ Provides cancer information and resources for patients, medical professionals, and researchers.
Local Cancer Statistics
Indiana State Cancer Registry http://www.in.gov/isdh/23456.htm Contains links to policy and procedure manuals, newsletters, training and education Information, laws governing the Cancer Registry, statistical reports, related sites, report generator, and annual incidence (1996-2004) & mortality reports (1990-2004).
ISCR Statistics Report Generator http://www.in.gov/isdh/24360.htm Generates user-defined reports based on data from the Indiana State Cancer Registry. Reports consist of tables that show counts or rates or both for incidence or mortality data.
National Cancer Resources
Cancer Control Planet http://cancercontrolplanet.cancer.gov Plan, link, act, network with evidenced-based tools. Sponsored by CDC, NCI, ACS, CoC, and more.
Cancer in North America http://www.naaccr.org/index.asp?Col_SectionKey=11&Col_ContentID=50 North American Association of Central Cancer Registries (NAACCR): Incidence & Mortality reports from states and other locations in North America.
National Cancer Data Base (NCDB) http://www.facs.org/cancer/ncdb A joint program of the Commission on Cancer (CoC) and the American Cancer Society (ACS). A nationwide oncology outcomes database for more than 1,400 Commission-approved cancer programs in the United States and Puerto Rico.
National Cancer Institute http://www.cancer.gov/ A national cancer site that features information about cancer topics, clinical trials, cancer statistics as well as research and funding.
National Cancer Institute: State Cancer Profiles http://statecancerprofiles.cancer.gov/risk/risk.html State Cancer Profiles from the National Cancer Institute. User can select screening or risk factors and sex for state-level data.
National Comprehensive Cancer Control Program (NCCCP) http://www.cdc.gov/cancer/ncccp/ Centers for Disease Control and Prevention’s national program website provides educational information, research updates, and links to valuable resources pertaining to cancer and cancer control efforts.
State Cancer Profiles http://statecancerprofiles.cancer.gov Cancer statistical profiles by state and primary site of cancer.
The Healthy States Initiative http://www.healthystates.csg.org/Publications/#preventingandmanagingdiseases Publications from The Healthy States Initiative in the form of talking points, briefs and tool kits (prevention, health equity, preventing colorectal cancer and preventing cervical cancer)
United States Cancer Statistics http://apps.nccd.cdc.gov/uscs 1999–2006 Cancer Incidence and Mortality Data, including the official federal statistics on cancer incidence from registries with high-quality data and cancer mortality statistics for each year and 2002–2006 combined. It is produced by the Centers for Disease Control and Prevention (CDC) and the National Cancer Institute (NCI), in collaboration with the North American Association of Central Cancer Registries (NAACCR).
Quality of Life/ Survivorship
Cancer Support Community http://www.twc-indy.org/index.htm Cancer Support Community is a non-profit organization provides a comprehensive program of psycho-social and emotional support, education, networking, and mind/body wellness through the strong partnerships we have with corporations and organizations in the community.
CDC – cancer survivorship http://www.cdc.gov/Features/CancerSurvivorship/ CDC website with survivorship information and resources for survivors.
The National Action Plan – (survivorship & public health) http://www.cdc.gov/cancer/survivorship/what_cdc_is_doing/action_plan.htm The National Action Plan represents the combined effort of almost 100 experts in cancer survivorship and public health. It identifies and prioritizes cancer survivorship needs and proposes strategies for addressing those needs.
Tobacco-Related Information
CDC’s State Tobacco Activities Tracking and Evaluation (STATE) System http://apps.nccd.cdc.gov/statesystem/statesystem.aspx?selectedTopic=90&selectedMeasure=90&dir=epi_report&ucName=UCdetail State Tobacco Activities Tracking and Evaluation (STATE) System.  Information available on behaviors, health consequences and costs, or legislation by a variety of measures to generate state-level data tables.
ITPC External Evaluation Reports http://www.in.gov/itpc/2342.htm ITPC’s external evaluation reports for Indiana Adult Tobacco Survey (2002-2008), Indiana Air Monitoring Study, Indiana Youth Tobacco Survey (2002-2008), and Media Tracking Surveys (2005-2008).
ITPC Fact Sheets http://www.in.gov/itpc/2341.htm ITPC fact sheets about smoking among adults & adult cessation, smoking among youth, burden of tobacco use, tobacco taxes, priority & special populations, tobacco use impacting health conditions, secondhand smoke, and tobacco in the workplace.
ITPC Key Reports and Research Articles http://www.in.gov/itpc/2339.htm ITPC website that features Indiana specific reports, national reports, and smoking/tobacco-related research articles.
Training for Cancer Registrars
NCRA http://www.ncra-usa.org/i4a/pages/index.cfm?pageid=1 NCRA is a not-for-profit association representing cancer registry professionals and Certified Tumor Registrars (CTR). NCRA’s primary focus is education and certification.
NPCR Education and Training Series (NETS) http://www.cdc.gov/cancer/npcr/training/nets/ NPCR Education and Training Series (NETS) is a series of educational tools for state trainers to support central cancer registries.  The modules were developed for CDC’s National Program of Cancer Registries (NPCR).
The North American Association of Central Cancer Registries, Inc. (NAACCR, Inc.) http://www.naaccr.org/index.asp?Col_SectionKey=10&Col_ContentID=295 The North American Association of Central Cancer Registries, Inc. (NAACCR, Inc.) develops and promotes uniform data standards for cancer registration, provides education and training, and certifies population-based registries, and aggregates/publishes data from central cancer registries.
Youth Risk Behavior Survey (YRBSS)
Indiana YRBS http://www.in.gov/isdh/20627.htm Indiana Youth Risk Behavior Survey (risk factors in high school students – state data)
National YRBS Data & Statistics http://www.cdc.gov/HealthyYouth/yrbs/index.htm Youth Risk Behavior Surveillance System is a national school-based survey conducted by the Centers for Disease Control and Prevention (CDC), which monitors priority health-risk behaviors and the prevalence of obesity and asthma among youth and young adults.
Additional Resources
The Community Guide – (cancer preventive services) http://www.thecommunityguide.org/cancer/index.html Guide to Community Preventive Services – The Community Guide (systematic review of interventions for cancer screenings, preventing skin cancer and informed decision making)
Trust for America’s Health http://healthyamericans.org/ “Trust for America’s Health (TFAH) is a non-profit, non-partisan organization dedicated to saving lives by protecting the health of every community and working to make disease prevention a national priority.”